Showing posts with label Life. Show all posts
Showing posts with label Life. Show all posts

Thursday, January 3, 2013

My Never Dream



I almost lost the ability to dream.
   
February 18, 2000. I was 23 years old, in the prime of my life and devastated by a Multiple Sclerosis diagnosis. All my dreams, from child hood to my young adult life, were destroyed in that moment and all I could think about were the things that would be taken from me, the things I would never be able to do, the dreams I would never accomplish.

6 years of flare-ups, blindness, numb legs and weight gain became my new reality.

April 2007 I realized I hated what my life had become. I missed being active and playing sports, I felt sorry for myself. In that moment I had a dream; a dream I believed in and a dream that ultimately changed my life.

I spent the next 9 months eating right, exercising and eventually lost 75 pounds. In that time I became friends with a triathlete who convinced me that swim, bike, run would be great to incorporate into my new lifestyle.  It took lots of convincing since I didn't really know how to do any of that!

I hadn’t even run a 5k before let alone completed a triathlon. Step one – sign up for a 5k! When I crossed the finish line I felt something amazing. It was exhilarating and emotional. There were many people who knew about my Multiple Sclerosis rooting me on. The days following I could see that my finish had moved these people and inspired them to do more, either for themselves or for a cause.

Needless to say, I was so proud and immediately ready for my next race. As they say, I caught the bug. 

I decided my first 5k was the stepping stone for my journey of inspiration.

Since my first race I’ve gone on to complete 6 additional 5k’s, 13 sprint triathlons, 1 Olympic, 1 70.3, 2 half marathons and 2 century rides. More importantly, I have inspired countless friends, family, acquaintances, athletes and others diagnosed with Multiple Sclerosis.  It has been the best experience hands down.

So I often say  that I do not want to compete in a full distance IRONMAN triathlon, its true....I only want to complete it and continue to inspire others including those living with this unpredictable disease, who need some encouragement to challenge the impossible.  In 2014 I will live this part of the dream.  It will be a long road to get there, but it's worth all the bumps in the road to get there!


Friday, December 28, 2012

The Holidays

Hi all.  It's been a while.  So we are right smack in the middle of christmas and new years.  Its is often a time for us to reflect on the past year.  Achievements, good times, bad times, regrets, etc.  I sit around just being thankful to be alive.  So thankful that I have been given the opportunity to compete in triathlons and inspire others.  I know it is cheesy but I truly feel that is my purpose :)

I wish you all the very bet for 2013 and remember that nothing is impossible, rome wasn't built in a day and you can't put the roof on the house if you haven't yet laid the foundation.

**Keep and eye out for my first marathon race report late february 2013**

All the best

John





Saturday, November 13, 2010

My three loves!

Have you every really asked yourself what are your LOVES?  Life can be crazy.  It's full of  things you really want to do, things you really should do and things you really have to do.  The WANTS are often the fun stuff.  Care free pie in the sky, I cross my fingers to be able to do them  The SHOULDS are usually important but we either don't know how to do them, or afraid to try or ask for help.  The HAVE TO are those basic necessities that if we didn't do we would be in trouble - Like go to work, pay the bills, grocery shopping, take the kids to school BOOOOOOOO! :(

So often I get caught up in the craziness of life and give myself a quick reality check.  I ask my self "What is most important in my life and to my life?"  For me it always comes down to 2 things.  My health and my family.  Sounds pretty simple right?  I guess if you are a high level kind of person you may read this and just move one, but for me I need to dive deeper in the details to get my self on track.

Saying your health is a top priority is great.  Making it your top priority often is challenging once you throw in all the stress of life.  I remember shortly after my diagnosis back in 2000 saying to my self. "I guess all those thoughts of being healthy are bit too late now." So I went on a tail spin and ignored my health, because I thought I had no options.   I figured that I now have MS and I didn't have a say in the matter.  Well I could not have been more wrong.  I had years of struggles living with an unpredictable decease.  There was the complete numbness of my legs, the loss of visions and often pain even to try and walk around.   Needless to say I didn't really like it.  I had gained tons of weight and was no longer happy with myself or my life.  I tried to mask the unhappiness with "FUN" stuff.   The problem was I wasn't being honest with myself.  I had given up on me because I thought that I had to.  I was just going thru the motions in life. I was just doing the "HAVE TO" stuff.  I had forgotten about the "SHOULDS" and "WANTS"

I remember early 2005 my Dr (Dr. Brian Apatoff - He is brilliant) tell me for the Umpteenth time that I needed to loose weight.  He said I needed to be under 200.  I was tipping the scales at 243lbs.  I'm only 5'10" (barely) It was unhealthy for anyone, let alone someone living with MS.  Over and over I told my self that I "SHOULD" loose weight.

I had always read and had been told that symptoms of MS were brought on by stress, but I never really understood what that fully meant. I remember being at a funeral and someone passing a comment that I overhead "With out your health your nothing"  I had heard this old cliche for every, but for some reason this time it struck a cord.  So after leaving a stressful event, I started to think about stress.  What is it?  Where does it come from?  Can I control it? If I can reduce it, will it make me feel any better?  I know that when it comes to someone passing in our lives we grieve in a certain way.  In a sense it is how we not only deal with the loss but deal with the stress.  Some are better than others.

So I dove right into - What are the stresses we all experience? I broke it into 3 categories

Chemical
Physical
Emotional

I asked my self "Which of these do I have the ultimate control over?" and the answer was simple.  Chemical and Physical. When it came to emotional I couldn't grasp how to get that one under control except for mental therapy, so I dismissed that and figured I would just go and lie on someone's couch for an hour here and there and tell them how I was feeling :)

Now it was time to dig deeper.  Chemical stress seemed to be the easiest. I asked myself "Self :) what chemicals do I put in my body?" First that came to mind was alcohol. I learned what it did to the body and kicked that out of my life.  Caffeine - I didn't consume much but realized that that made my body race and get hot from the inside which when you have MS you learn quickly that keeping you body temp low is better.  Then I looked into what I thought all these crazies were talking about when it came to organic foods.  I started to inspect labels and realize that much of what I was eating was loaded with chemicals  I'm pretty certain that our bodies where not designed (by whom ever your creator is) to consume and digest what you would find in any so many everyday foods.  I mean when was the last time you saw a High Fructose Corn Syrup tree?  Do they grow next to the Hydrogenated oil plants? So i made a conscious decision.  If I needed a degree in chemical engineering to know what's in my food I'm not eating it.  On top of that I learned portion control and lost 30 pounds just changing that.  I removed the chemical stress on my body.  My body no longer freaked out when it was trying to digest something.

I didn't realize it but changing eating habits and foods helped with physical stress.  I first thought physical stress was lifting heavy things. Well it was in a sense the heavy thing, for me  I was lifting was my heavy body.  I now had lowered the weight of my body and started to feel better.  I had eliminated the chemical stress and started to reduce the physical.  So I decided to (as Emeril would say) to Kick it up a notch!  I started to lay out a plan for exercise.  I started on elliptical machines, did some strength training and then a little jumping of rope here and there.  It was the most amazing thing.  In 9 months time I lost a total of 70 pounds and I was now weighing in at 172 pounds BAMM!

Life had completely changed form me.  Everything started to fall into place naturally. That emotional stress that I wasn't sure how to deal with turned out to be easy.  I would exercise and it was a great release for me.  It was the best double edged sword.  If I exercised I was working both on my physical and emotional stress. I have been symptom free since the day I changed my life style.  I now find it easier to deal with the curve balls that life throws at me.  I have a better relationship with my family and my friends.  You find that when you are in a positive place and are involved in healthy activities you find your self surrounded by others with the same goal......... to live a healthy life.

So know I always make time for my 3 loves .......... Family, Exercise and a Healthy life.

See you soon!


Saturday, October 23, 2010

What's your snake pit?

Today I received a team cycling jersey from a pharmaceutical company.



 and I was remembering the day I was diagnosed with multiple sclerosis (2/18/00 incase you were wondering).  I specifically remember that I need to chose a medication to help halt my Multiple Sclerosis.  Now normally that wouldn't be an issue if oral medication were an option.  Lucky me; ok not so lucky me;  the only options we're 3 medications that could only be taken were by injection.  The options at the time were referred to as the ABC drugs. Here they are.

1) Avonex  - Injection once per week.  Giant 3 inch needle that you need to put all the way in your thigh. OUCH!

2) Betaseron  - Injection every other day.  Same needle and location as above EEEK!

3) Copaxone - Injection every day.  Small, thin 1/2 needle taken just under the skin.  


Even though my biggest fear is needles I chose Copaxone.  While there is a good portion of the world that has no issue with needles, I am not part of that world.  For me needles are my biggest phobia.  I have forever been nicely criticized for this fear.  I mean if you are taking a medication that is supposed to and does help you live with an unpredictable disease you get over it....right! Hmmmmmmm well lets think.  For some their biggest phobia may be heights, fire, spiders or even snakes. Think about your biggest phobia, in fact lets pretend you are deathly afraid of snakes.  Now imagine  being thrown into a snake pit every day.  No worries, if you do this everyday your healthy will hopefully improve.  I'm guessing you would not easily get over it, or even at all.   That is what people living with MS have to deal with.  

So I am not writing ting this to complain because I don't.  In fact I feel that there are worse things in the world than living with Multiple Sclerosis.  If I get to open my eyes everyday I feel blessed and cherish the day.  I write this only because there are many people living with MS like me that have to deal with this.

I have been very fortunate to take control of my life and accomplish many things that even people not living with Multiple Sclerosis have a difficult time doing.  I may be able to think if at least one thing.........Triathlons!  I love that I am able to call my self a Triathlete. I feel blessed that I can even train for such an endeavor.

So everyday for over 10 years i have been taking Copaxone... I have been jumping into my pit of snakes everyday.  It is the toughest thing I have to do everyday, but do it because I know it helps.   All of this being said I must ask you what your phobias are? What are you scared of? What is your Snake Pit?

Monday, October 11, 2010

My First Triathlon Season 2010

Its early october here in the north east and I reflect on My First Triathlon Season 2010 and all that I was able to accomplish this past year.  I remember this past february that my friend Carl has suggested that I do a triathlon.  I thought he was crazy!  I had never done any running or could i swim more than 25 yards with out gasping for air.  Plus in my mind someone with Multiple Sclerosis is not usually the endurance sport type.  He explained the distance of Sprint Length Triathlon to me (0.5 mile swim, 12 mile bike, 5k run) and mentioned there was a race 15 minutes from my house in July 2010.  It then sounded very trainable so I signed up that day and freaked out!


As the weeks went by I try to swim and just couldn't figure out how to breath in the water.  I was thrashing like a giant sword fish in the water.  Running was a bit easier.  I have always been able to put one foot in front of the other :)  So I hit the treadmill.  1/2 mile because a full mile.  1 mile became 3 and 4,5....etc.  I signed up for my first 5k or any race for that matter in april.  It was an amazing feeling just crossing the finish line.  That day i went home all sweaty and signup for a bunch more.


It's an amazing sense of accomplishment for anyone, but it was extra special for me living with MS.  I am very involved with local MS societies and often I see people in wheel chairs and with canes.  I know these people may never have this opportunity.  I'm lucky.


So as My First Triathlon Season 2010 comes to a close for me i have the following on the books as complete!  Never say you can't do something!  Just Try it (or just Tri it! :)


2010 Races

- Daffodil Dash 5k April 10 2010 - overall 27:46 pace 8:57

- Westport Minute man www.wywl.com 5k May 2 2010 - overall 27:44 pace 8:52

- Weston Memorial day 5k May 29 2010 overall 26:25 pace 8:30

- Hope In Motion Stamford CT  www.hope-in-motion.org June 6 2010 overall 24:44 pace 7:57

- MS Bike 30 mile June 13 2010 overall 1:55:22

- Bloomin Metric Bike 25 mile www.soundcyclists.com/BloominMetric  June 23 2010 1:38:24

- Fairfield CT 5k www.fairfieldhalf.org/ June 27 2010 overall 25:57 pace 8:22

- MOSSMAN SPRINT TRIATHLON teammossman.com/ July 18 2010 .5 mile swim, 12 mile bike, 5k run 1:33:11

- Niantic Bay CT Triathlon August 8th .5 mile swim, 12 mile bike, 3.5 mile run 1:31:00

- Adventure Triathlon Brigdton Maine 2.5 mile kayak, 14 mile mountain bike, 2 mile trail run 3:31:10


- MS NY Bike Tour 60 miles 4:48:00