Saturday, November 13, 2010

My three loves!

Have you every really asked yourself what are your LOVES?  Life can be crazy.  It's full of  things you really want to do, things you really should do and things you really have to do.  The WANTS are often the fun stuff.  Care free pie in the sky, I cross my fingers to be able to do them  The SHOULDS are usually important but we either don't know how to do them, or afraid to try or ask for help.  The HAVE TO are those basic necessities that if we didn't do we would be in trouble - Like go to work, pay the bills, grocery shopping, take the kids to school BOOOOOOOO! :(

So often I get caught up in the craziness of life and give myself a quick reality check.  I ask my self "What is most important in my life and to my life?"  For me it always comes down to 2 things.  My health and my family.  Sounds pretty simple right?  I guess if you are a high level kind of person you may read this and just move one, but for me I need to dive deeper in the details to get my self on track.

Saying your health is a top priority is great.  Making it your top priority often is challenging once you throw in all the stress of life.  I remember shortly after my diagnosis back in 2000 saying to my self. "I guess all those thoughts of being healthy are bit too late now." So I went on a tail spin and ignored my health, because I thought I had no options.   I figured that I now have MS and I didn't have a say in the matter.  Well I could not have been more wrong.  I had years of struggles living with an unpredictable decease.  There was the complete numbness of my legs, the loss of visions and often pain even to try and walk around.   Needless to say I didn't really like it.  I had gained tons of weight and was no longer happy with myself or my life.  I tried to mask the unhappiness with "FUN" stuff.   The problem was I wasn't being honest with myself.  I had given up on me because I thought that I had to.  I was just going thru the motions in life. I was just doing the "HAVE TO" stuff.  I had forgotten about the "SHOULDS" and "WANTS"

I remember early 2005 my Dr (Dr. Brian Apatoff - He is brilliant) tell me for the Umpteenth time that I needed to loose weight.  He said I needed to be under 200.  I was tipping the scales at 243lbs.  I'm only 5'10" (barely) It was unhealthy for anyone, let alone someone living with MS.  Over and over I told my self that I "SHOULD" loose weight.

I had always read and had been told that symptoms of MS were brought on by stress, but I never really understood what that fully meant. I remember being at a funeral and someone passing a comment that I overhead "With out your health your nothing"  I had heard this old cliche for every, but for some reason this time it struck a cord.  So after leaving a stressful event, I started to think about stress.  What is it?  Where does it come from?  Can I control it? If I can reduce it, will it make me feel any better?  I know that when it comes to someone passing in our lives we grieve in a certain way.  In a sense it is how we not only deal with the loss but deal with the stress.  Some are better than others.

So I dove right into - What are the stresses we all experience? I broke it into 3 categories

Chemical
Physical
Emotional

I asked my self "Which of these do I have the ultimate control over?" and the answer was simple.  Chemical and Physical. When it came to emotional I couldn't grasp how to get that one under control except for mental therapy, so I dismissed that and figured I would just go and lie on someone's couch for an hour here and there and tell them how I was feeling :)

Now it was time to dig deeper.  Chemical stress seemed to be the easiest. I asked myself "Self :) what chemicals do I put in my body?" First that came to mind was alcohol. I learned what it did to the body and kicked that out of my life.  Caffeine - I didn't consume much but realized that that made my body race and get hot from the inside which when you have MS you learn quickly that keeping you body temp low is better.  Then I looked into what I thought all these crazies were talking about when it came to organic foods.  I started to inspect labels and realize that much of what I was eating was loaded with chemicals  I'm pretty certain that our bodies where not designed (by whom ever your creator is) to consume and digest what you would find in any so many everyday foods.  I mean when was the last time you saw a High Fructose Corn Syrup tree?  Do they grow next to the Hydrogenated oil plants? So i made a conscious decision.  If I needed a degree in chemical engineering to know what's in my food I'm not eating it.  On top of that I learned portion control and lost 30 pounds just changing that.  I removed the chemical stress on my body.  My body no longer freaked out when it was trying to digest something.

I didn't realize it but changing eating habits and foods helped with physical stress.  I first thought physical stress was lifting heavy things. Well it was in a sense the heavy thing, for me  I was lifting was my heavy body.  I now had lowered the weight of my body and started to feel better.  I had eliminated the chemical stress and started to reduce the physical.  So I decided to (as Emeril would say) to Kick it up a notch!  I started to lay out a plan for exercise.  I started on elliptical machines, did some strength training and then a little jumping of rope here and there.  It was the most amazing thing.  In 9 months time I lost a total of 70 pounds and I was now weighing in at 172 pounds BAMM!

Life had completely changed form me.  Everything started to fall into place naturally. That emotional stress that I wasn't sure how to deal with turned out to be easy.  I would exercise and it was a great release for me.  It was the best double edged sword.  If I exercised I was working both on my physical and emotional stress. I have been symptom free since the day I changed my life style.  I now find it easier to deal with the curve balls that life throws at me.  I have a better relationship with my family and my friends.  You find that when you are in a positive place and are involved in healthy activities you find your self surrounded by others with the same goal......... to live a healthy life.

So know I always make time for my 3 loves .......... Family, Exercise and a Healthy life.

See you soon!


Saturday, October 23, 2010

What's your snake pit?

Today I received a team cycling jersey from a pharmaceutical company.



 and I was remembering the day I was diagnosed with multiple sclerosis (2/18/00 incase you were wondering).  I specifically remember that I need to chose a medication to help halt my Multiple Sclerosis.  Now normally that wouldn't be an issue if oral medication were an option.  Lucky me; ok not so lucky me;  the only options we're 3 medications that could only be taken were by injection.  The options at the time were referred to as the ABC drugs. Here they are.

1) Avonex  - Injection once per week.  Giant 3 inch needle that you need to put all the way in your thigh. OUCH!

2) Betaseron  - Injection every other day.  Same needle and location as above EEEK!

3) Copaxone - Injection every day.  Small, thin 1/2 needle taken just under the skin.  


Even though my biggest fear is needles I chose Copaxone.  While there is a good portion of the world that has no issue with needles, I am not part of that world.  For me needles are my biggest phobia.  I have forever been nicely criticized for this fear.  I mean if you are taking a medication that is supposed to and does help you live with an unpredictable disease you get over it....right! Hmmmmmmm well lets think.  For some their biggest phobia may be heights, fire, spiders or even snakes. Think about your biggest phobia, in fact lets pretend you are deathly afraid of snakes.  Now imagine  being thrown into a snake pit every day.  No worries, if you do this everyday your healthy will hopefully improve.  I'm guessing you would not easily get over it, or even at all.   That is what people living with MS have to deal with.  

So I am not writing ting this to complain because I don't.  In fact I feel that there are worse things in the world than living with Multiple Sclerosis.  If I get to open my eyes everyday I feel blessed and cherish the day.  I write this only because there are many people living with MS like me that have to deal with this.

I have been very fortunate to take control of my life and accomplish many things that even people not living with Multiple Sclerosis have a difficult time doing.  I may be able to think if at least one thing.........Triathlons!  I love that I am able to call my self a Triathlete. I feel blessed that I can even train for such an endeavor.

So everyday for over 10 years i have been taking Copaxone... I have been jumping into my pit of snakes everyday.  It is the toughest thing I have to do everyday, but do it because I know it helps.   All of this being said I must ask you what your phobias are? What are you scared of? What is your Snake Pit?

Monday, October 18, 2010

Rethinking your fuel. PROBAR & GU work like magic!

So I think I have said it s few time already, but I am new to this whole endurance sport thing.  I learned really quick the hard way that in order to endure you need to have some fuel to burn.  Sounds like common sense but I just never thought about it until i was on my first group ride with a great team of cyclist.  They motivated me to join the and like everything in my life I tried it.  I was able to hang for about 1 1/2 - 2 hours at a pace that is much faster than my norm (22+ mph).....and then it happened!  Just like a car I ran out of fuel.  My legs literally had no more energy.  At first I was nervous that is was related to MS, but then after they came back for me and I told them what happened, they all asked the same thing.  What did you eat before and what food do you have with you now?  Do you GU? I had nothing with me and kept it light prior to getting out there.  They gave me a banana and some GU. It was amazing how quick I felt the affects.




Since then I started to Rethink my fuel.  Now I pack some GU and start each long work out with a PROBAR.


It's packed with tons of organic whole grains and sustainable energy.  That keeps me going for at least 1 1/2 hours.  Then I make sure I follow the rules of GU, I take one for every 45 minutes of exercise.  So that its!  

Now the only time I crash is when I forget to clip out of my pedals :)  



Sunday, October 17, 2010

First day of indoor CycleOps training!

I'm feeling really good today.  No surprise MS issues.  So I spent a nice crisp fall evening training indoors on my CycleOps. 8 months ago I never would have know what the heck a CycleOps was. A mythical creature, a type of hi tech NASA equipment or fancy navigation tool? Nope its the coolest indoor cycling equipment where you lock your actual bike onto it. I popped in the movie CLUE with Tim Curry (I know its a crazy old school 80's flick, but it was awesome) and just hit the pedals.  About an hour later I finished one of the most amazing training sessions ever.  Additionally I learned that Mrs. Peacock killed Mr. Body in the study with the candle stick :) 
So if you are ever looking for a great way to still stay on you bike during the cold weather, an indoor CycleOps trainer is highly recommended.   I have this one http://miniurl.com/60666 its like cycling on glass.  


  


Monday, October 11, 2010

My First Triathlon Season 2010

Its early october here in the north east and I reflect on My First Triathlon Season 2010 and all that I was able to accomplish this past year.  I remember this past february that my friend Carl has suggested that I do a triathlon.  I thought he was crazy!  I had never done any running or could i swim more than 25 yards with out gasping for air.  Plus in my mind someone with Multiple Sclerosis is not usually the endurance sport type.  He explained the distance of Sprint Length Triathlon to me (0.5 mile swim, 12 mile bike, 5k run) and mentioned there was a race 15 minutes from my house in July 2010.  It then sounded very trainable so I signed up that day and freaked out!


As the weeks went by I try to swim and just couldn't figure out how to breath in the water.  I was thrashing like a giant sword fish in the water.  Running was a bit easier.  I have always been able to put one foot in front of the other :)  So I hit the treadmill.  1/2 mile because a full mile.  1 mile became 3 and 4,5....etc.  I signed up for my first 5k or any race for that matter in april.  It was an amazing feeling just crossing the finish line.  That day i went home all sweaty and signup for a bunch more.


It's an amazing sense of accomplishment for anyone, but it was extra special for me living with MS.  I am very involved with local MS societies and often I see people in wheel chairs and with canes.  I know these people may never have this opportunity.  I'm lucky.


So as My First Triathlon Season 2010 comes to a close for me i have the following on the books as complete!  Never say you can't do something!  Just Try it (or just Tri it! :)


2010 Races

- Daffodil Dash 5k April 10 2010 - overall 27:46 pace 8:57

- Westport Minute man www.wywl.com 5k May 2 2010 - overall 27:44 pace 8:52

- Weston Memorial day 5k May 29 2010 overall 26:25 pace 8:30

- Hope In Motion Stamford CT  www.hope-in-motion.org June 6 2010 overall 24:44 pace 7:57

- MS Bike 30 mile June 13 2010 overall 1:55:22

- Bloomin Metric Bike 25 mile www.soundcyclists.com/BloominMetric  June 23 2010 1:38:24

- Fairfield CT 5k www.fairfieldhalf.org/ June 27 2010 overall 25:57 pace 8:22

- MOSSMAN SPRINT TRIATHLON teammossman.com/ July 18 2010 .5 mile swim, 12 mile bike, 5k run 1:33:11

- Niantic Bay CT Triathlon August 8th .5 mile swim, 12 mile bike, 3.5 mile run 1:31:00

- Adventure Triathlon Brigdton Maine 2.5 mile kayak, 14 mile mountain bike, 2 mile trail run 3:31:10


- MS NY Bike Tour 60 miles 4:48:00